Tuesday, June 30, 2009
Yesterday I had yet another chemo treatment... another attempt at Herceptin
In order to prepare my body for this drug I have to take lots of steroids... 20 mgs at 10:00pm and another 20mgs at 4:00a.m the morning of my treatment... that is the problem... I am up at 4:00a.m.... I have to eat something to take the steroids. So now I am up eating chocolate chip cookies and milk at 4am as my mind races, and I start to have anxiety over the fact that I have to do this every three weeks for the rest of my life! These Herceptin treatments are supposed to try to prolong my life. The whole this is sort of daunting.... So I shuffled my kids off to several different willing friends and family members who were willing to help out till I came home from my four hour IV treatment. I usually need a good two hour nap after my treatment so my day is sort of lost from the treatment and my kids have told their caregivers that "mommy, had to get her "yucky" medicine today"... but once I wake up from nap the steroids are still in my system and I'm awake until 3am that night... and I'm awake again until all of the steroids that are used to prepare my body for the chemo drugs leave my system. It is all in a days work as a cancer patient. The toughest work I had that day of chemo was the conversation I had with my oncologist. It has taken me several months to gain the courage to ask him this question..... I frankly asked him... "so...how long do I really have .. ? I know it is in my lungs,.. I know it is in my spine.. I know you can't cure me... I get that.. " ... "so my question is WHEN?" Without missing a beat... he responded by saying... "you have four years.. three months.. fifty-five days.. four hours.. and twenty-five seconds...."... to which I replied..."I get it.. You don't know".... His answer "NO... "... I then asked... Will I live to be 80?"... His answer with no hesitation .... "NO"... that stung!... and I was happy my mother was not in the exam room when he said it but I was glad I was brave enough to accept it although the reality of it nearly brought me to tears.
Sunday, June 28, 2009
Today I went to chruch to be uplifted and the topic was the after life... and finding your eternal partner... What is with that?
I am trying to grabble with the thought that I may not find a mate for time and all eternity because I might not have enough time on this earth to find one!!! Besides it isn't exactly the highest of my priorities at the moment! Chemo, eating right, loving my kids, getting the divorce papers finalized from signed and in proper order from idiot are my priories!
My best friend and I giggled during the lesson as we considered all of the irony of this and realized the fact that if I actually do find a new "husband" for lack of a better word, it will be an "up-grade" at this point from what I am currently having to deal with in terms of support. All in all in was no the emotional spiritual experience I was hoping for by going to church but still gave me hope and food for thought and if anything direction. I must still persevere for the sake of my kids who by the way i must pick up in an hour!
Tomorrow I have yet another chemo treatment. I am in a mad scramble to make arrangements for people to take responsibility for my kids while I am hooked up to an IV for nearly five hours. The coordination of the children sometimes is more stressful than the treatment itself.
My best friend and I giggled during the lesson as we considered all of the irony of this and realized the fact that if I actually do find a new "husband" for lack of a better word, it will be an "up-grade" at this point from what I am currently having to deal with in terms of support. All in all in was no the emotional spiritual experience I was hoping for by going to church but still gave me hope and food for thought and if anything direction. I must still persevere for the sake of my kids who by the way i must pick up in an hour!
Tomorrow I have yet another chemo treatment. I am in a mad scramble to make arrangements for people to take responsibility for my kids while I am hooked up to an IV for nearly five hours. The coordination of the children sometimes is more stressful than the treatment itself.
Friday, June 26, 2009
"He Now Knows...." I am now free to write...
"He".. Meaning "idiot".. I refer to idiot as my "ex" or my soon-to-be-ex.
What does he know?... That my breast cancer has come back in my spine and my lungs. I now have Stage 4 cancer. I am a single mother to three children, ages, 9 1/2 , 5 1/2, and 3 yrs. I am struggling with the fact daily with the fact that I now have an illness that is not curable. It is my hope that I live to see my kids grow up. Today Farrah lost her fight with cancer, it frightens me that the same might happen to me someday. Until then.. I will continue to fight and live.
I have lived in fear for the past six weeks, concerned that if idiot found out he would try to sue for full custody of the kids in an attempt to lower his child support(relocating to where he now lives an hour away) and secondly... he would a take it upon himself to tell the kids. Well, so far he did tell so far he acted out one of my fears..so I guess after 13 years of marriage I know him fairly well. He told the kids.
I reassured them that all this means for now is that I need lots of x-rays. I did tell them there would be days when the medicine would make me tired but for now, my hair would not be falling out... and if it should I would tell them before it does. They were okay with this since they have seen me loose all of my hair before. The day after I explained this, I took them to California Adventure.. so I doubt they considered me very sick.
So from this point forward, I write.. my fears, my joys, my laughs, my tears, my pain, my loss, etc , etc, etc... Join me on my journey living life having cancer with a side of kids!
What does he know?... That my breast cancer has come back in my spine and my lungs. I now have Stage 4 cancer. I am a single mother to three children, ages, 9 1/2 , 5 1/2, and 3 yrs. I am struggling with the fact daily with the fact that I now have an illness that is not curable. It is my hope that I live to see my kids grow up. Today Farrah lost her fight with cancer, it frightens me that the same might happen to me someday. Until then.. I will continue to fight and live.
I have lived in fear for the past six weeks, concerned that if idiot found out he would try to sue for full custody of the kids in an attempt to lower his child support(relocating to where he now lives an hour away) and secondly... he would a take it upon himself to tell the kids. Well, so far he did tell so far he acted out one of my fears..so I guess after 13 years of marriage I know him fairly well. He told the kids.
I reassured them that all this means for now is that I need lots of x-rays. I did tell them there would be days when the medicine would make me tired but for now, my hair would not be falling out... and if it should I would tell them before it does. They were okay with this since they have seen me loose all of my hair before. The day after I explained this, I took them to California Adventure.. so I doubt they considered me very sick.
So from this point forward, I write.. my fears, my joys, my laughs, my tears, my pain, my loss, etc , etc, etc... Join me on my journey living life having cancer with a side of kids!
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